It's time to take a break from the weather and help a little 5 year old girl from Pearcy. Ali Vise is in a fight for her life. Batten disease is a rare, fatal, terminal, neurological disease for which there is currently no cure. Batten is fatal in that it only affects children & robs them of their ability to walk, to talk, to see, and eventually leaves them as a vegetable to die. Children with this disease do not get to play sports or even live long enough to go to their senior prom. There are 9 different variations of Batten disease. Ali has Infantile form which is the most fatal. The life expectancy for Infantile is 8-11 years.
I met Ali and her family on the set of Saturday Daybreak last February. As a parent, your worst nightmare is to see your child suffering or any other child. Ali has touched so many lives, including my own and I have decided to help out in any way possible. Thanks to A Brave New Restaurant, tvmediaclips.com, and the Weatherninja. We're holding an online auction to raise money to find a cure for Ali. We have another goal as well and that's to raise awareness of this extremely rare and deadly disease. One day a cure will be found and it starts with all of your help!
Place your bid on ebay now. The winner and a guest will dine at one of Little Rock's finest restaurants (A Brave New Restaurant) with me and the WeatherNinja, Michael Hook. Can you think of a better way to spend an evening? You can enjoy weather talk with the 2 BIGGEST weather geeks in Arkansas, great food, and for a fantastic cause? This dinner has a cash value of $200.
CLICK HERE FOR THE EBAY AUCTION
To learn more about Batten Disease, please visit Batten Disease Support and Research Association (BDSRA) and BEYOND BATTEN
Also, "like" Ali's facebook page and show your support " CLICK HERE
You can also receive discounted prescription drugs with a special card that also donates to Ali. Here's the link to sign up. CLICK HERE
Special thanks to tvmediaclips.com for providing video you will see in a story which air on Channel 7 Daybreak Thursday morning between 6:20 - 6:30.
2 comments:
Thank you Todd for your support of Ali and for your efforts to raise awareness of Batten.
Bet most people did not know that the Beyond Batten Disease Foundation was started by an Arkansas.
Good Job Todd,Weatherninja & KATV Channel 7, My prayers are going out for Ali & Her family..I hope & pray we find a cure soon!!..Hope the Ebay Auction grows into the Thousands!!
SnowbirdBob AKA Bob Read
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